Helpful Online Communities

I went through horrible withdrawal from psychiatric drugs few years ago. For some time I wasn’t able to even leave my house.
I had severe cramps, body aches, anxiety, vertigo, problems with basic things (like eat, sleep, move) and many many more. This is how my life looked like for a year. When I was able to sleep for at least 5 hours per night, my whole body improved to the point of neurotic person who can eat, sleep and walk without help from others.
Little things. Underestimated things.

The internet was my only way to communicate with people for quite a while.

These are the sites I’ve found the most helpful:

7 cups

Online therapy. You can seek help or provide one by becoming a listener (this is what I’m doing too).

Surviving Antidepressants

Forum where you can get some very useful information about tapering psychiatric drugs.

Reddit

You can find almost any topic in there or open your own. It’s not an instant help option, but you can get many helpful insights from people with the same mental problems, other issues, or have a debate about anything else you want to focus on.
The worst thing you can do to yourself when you don’t feel so good is to focus too much on your illness or any other bad stuff. Been there, done that and I really don’t recommend it.

Facebook, Instagram, Twitter, YouTube

Instagram was the most useful for me, because I was still able to take pictures when I wasn’t so good with words.

These sites can be very helpful and informative. But before you put anything in your body, I strongly recommend you to consult with your doctor or pharmacist.
Doctors are humans too, and nobody knows everything. Some are better in one area, others in another. It’s best to find the ones who are willing to listen to you and are willing to discuss all possible options to provide you the best help you deserve. In good doctor – patient relationship, you learn from each other as well.
The same goes for psychotherapy. You can get plenty of good advice online, but it’s best to have some offline consultations as well.

Which online community do you find the most useful?

15 Replies to “Helpful Online Communities”

  1. I went through a 24 hour period of withdrawal due to a hospital error, would you believe! It was the most horrible feeling, so I have the deepest sympathy for anyone who has a long term experience. You blog is very helpful, Maja. Certainly agree that everyone has to find their own way as we are all so different and that’s why it is so important for people to tell their storiesd. Thank you so much and good luck always.

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  2. Hi, I’m curious, how are you doing now? You wrote that you withdrew from one or more psych meds a few years ago. What was your experience like? Perhaps you wrote about this before, but this is my first time on your site.

    I hope you’re doing well. I’d be interested in talking about your experience coming off the psych drugs, if you’re open to that.

    Best,

    Paul

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    1. Hi, Paul, I’m doing better at the moment, thanks for asking.
      I was taking paroxetine, fluoxetine, sertraline, escitalopram, venlafaxine, duloxetine, bupropion, trazodone, alprazolam, zolpidem, diazepam, gabapentin, pregabalin, tramadol, methadone. I also have a very short experience with quetiapine, risperidone and promazine. Of course I didn’t take all of them at once and some of them for a very short period of time. I’m currently on atomoxetine, clonazepam and lamotrigine (very low dose of the last two). It wasn’t easy, each of them has its own withdrawal. The most important thing I’ve learned was to go slow and not pushing your body to adapt to fast. It took me a whole year to come of 2 mg of clonazepam. This was the hardest. Some people can handle the withdrawal faster, I’m the one who needs much more time to adapt. You need to figure out your own tempo. I really don’t recommend withdrawing without proper psychological support (you know, the talking part), which I didn’t get. This was my fault completely. I somehow thought that my own medical knowledge and experience will be enough along with some internet support, but I couldn’t be more wrong. One lesson learned. 🙂
      I might write more detailed post in the future, but I’m preoccupied with other things at the moment. I hope this helps a little.

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